A brilliant day at the James Parnell Stadium for Jack


Welcome to the Netherton Syndrome Group Website

This website has been produced because of Jack Oldacres who was born with the condition. His family want to help raise awareness of his condition, and over the last 2 years since the site has been set up we have grown our base of followers and friends to nearly 1000 facebook members. 


We have friends from America to Australia, Nuneaton to Las Vegas. The things this site has achieved are way beyond what we set out to do and the Facebook page has brought people with the condition closer together.  Please have a look around at the different pages, with information on how Jack coped in his early few month's and his daily routine - his cream and medicine he used and is using.

There are pages with all the events our Jack and his friends have been up to, from Uniparts Got Talent to the Nuneaton Carnival Walk. Everyone has been busy helping raise funds and awareness.

We have a profile page on some of our friends who are involved in helping raise awareness and living with the condition.

And without the help of some kind hearted people and companies who give up their time and money to raise much needed funds and donation's we wouldn't be here, we have set up a page to thank them for their kindness.

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