Netherton's Syndrome

Welcome to the Netherton Syndrome Group Website

This website has been produced because of little Jack Oldacres who was born with the condition. His Family want to help raise awareness of this contition and with the help of this site, we hope people can understand how life is with the condition and also help those who are affected. This site will chart the progress of Jack as he grows up with Nethertons his routines hospital visits and charity events we and jack get involved with. The group are helping raise money to fund research into the condition and hopefully in the long term a cure for Nethertons. So please feel free to have a look around our few pages with photo's and blogs with things we are all getting upto.

 www.nethertonsyndrome.com aren't are registered charity all our efforts and events we run are for a charity called the Ichthyosis Support Group they are a collective skin condition group which covers Nethertons and other simular conditions, so we really wanted to work with them to raise as much money to help with the research and support to people in the same position as Jack.

Please have a look at the website and see some of the things that the ISG are upto.